On November 18 2009 at 4:02 am William Alan Bartosch was joyfully welcomed into our family. He weighed in at 7 lbs 9 oz and 20 in long. We were stunned to discover that he was born with Trisomy 21, or Down syndrome. We love him unconditionally from the top of his toe-head to the tips of his toes. We know that this diagnosis will not define him. He is a happy, healthy little boy that just happens to have an extra chromosome.



Follow us on this unexpected and exciting journey as we learn how to live life Will's Way.



Tuesday, January 25, 2011

Silly Willy

More videos of Will making me laugh!
The spitting game wouldn't be so cute if it wasn't also progress.  As I have been taught by the speech therapists anything that you do that you can get Will to imitate or repeat is good for learning speech because it is the development of 'turn-taking' and that is what all speech is based on.  So we take turns spitting all over each other:)

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Here is a little peek at Will's dancing skills!  The boy loves to groove:)

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I also wanted to thank everyone again that supports DSACO and the Buddy Walk.  Tonight at our New Parent Support Meeting I was reminded of why that organization is so important to me.  Catching up with all the families that we have met this year and celebrating all of our little's accomplishments makes me feel not so alone and really pretty proud of our journey.  It is a great organization and a wonderful group of people and it feels good to be able to share our ups and downs with others that have walked the walk and get that it is a major accomplishment that Will took a sip from a cup.  They all cheered:)
There was a new couple there tonight that have not yet brought there baby with an extra special chromosome into this world.  She will be here in a couple months.  It was amazing to me that they had the courage to come to one of our meetings and it was so great for all of us to be able to congratulate and hug them and possibly make their journey a little easier to start:)

Tuesday, January 11, 2011

Will's Drinking Problem

Will refuses to drink out of anything but a bottle...until last night!  We did our normal dinner routine of placing the cup on his tray while we eat so that he can throw it overboard 100 times and then I can tell him 'no' 100 times.  Then at the end of dinner I always offer him a drink to which he adamantly turns his head away to tell me 'no'.  Last night after telling me 'no' several times, he decided he would give in and try it.  I proceeded to be his biggest cheerleader and it worked because he continued taking sips.  He took sips from his cup all day today and even decided he wanted to hold the cup tonight at dinner.  I guess I finally wore him down:)  I am exhausted from all the cheering.  Now who is more stubborn!
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He has to keep one eye on the camera to make sure daddy is still watching!

Check out my cool new T that Grandpa Ron sent me!

Tuesday, January 4, 2011

Will Can Crawl!

Will started crawling on New Year's Day!  It was a happy day:)  It is a bit uncoordinated, but he gets where he needs to go.  And he works so hard while doing it!  Which makes me want to make a list of his accomplishments to date.  It is easy to get caught up in what Will can not do, and forget all that Will can do:)  So Grandma Sandy, this is us seeing the glass half full!  Also thought it might be a good reference for anyone out there with a little that has an extra special chromosome that is wondering what to expect.
Smiled 1.8.10 (1 month)
Cooed 1.13.10 (1 month)
Grasped objects 2.12.10 (2 months)
Grabed feet 3.14.10 (3 months)
Rolled from belly to back 3.18.10 (4 months)
Rolled from back to belly 4.14.10 (4 months)
Started babbling 'baba' and 'dada' 6.27.10 (7 months)
Sat up independently 8.4.10 (8 months)
Self fed Cheerios 8.9.10 (8 months)
Clapped 8.22.10 (9 months)
Waved bye-bye 9.3.10 (9 months)
Got in and out of sit 10.4.10 (10 months)
First tooth 10.11.10 (10 months)
Crawled 1.1.11 (13 months)

A video of Will crawling...

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A video of Will clapping and waving...note how well he isolates his little finger and drags the Cheerio:)

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You also get a taste of his best fake cough and his relationship with the cup!