On November 18 2009 at 4:02 am William Alan Bartosch was joyfully welcomed into our family. He weighed in at 7 lbs 9 oz and 20 in long. We were stunned to discover that he was born with Trisomy 21, or Down syndrome. We love him unconditionally from the top of his toe-head to the tips of his toes. We know that this diagnosis will not define him. He is a happy, healthy little boy that just happens to have an extra chromosome.

Follow us on this unexpected and exciting journey as we learn how to live life Will's Way.

Wednesday, February 9, 2011

Bath Time Fun

Sorry I have been away.  We have been sick, busy and then sick again and busy again.  Will is so fun lately.  He is just doing a lot of funny things and keeps us laughing:)  Bath time at our house is a major event!  He is a crazy man in the tub.  It is an olympic sport or at the very least, some very good PT.  I have a great video of him splishing and splashing...but it won't load:(  For now here are some pics and I will keep trying.

We have started meeting with the Childhood League for our home based therapies and it is going well.  We have met with all the therapies...Physical Therapy, Speech Therapy, Occupational Therapy and Early Intervention Specialist and they are all great.  We have more meetings set up soon.  Will had his follow up appointment at the endocrinologist this past week.  His bloodwork showed that his TSH levels are all back to normal with the medicine.  So it is working and we will stick with the current dose and go back in 3 months.  We were happy about that.  Will is again battling thrush right now and had a little cold but has not been nearly as sick as everyone else around him.  Three of his little friends landed themselves in the PICU (Pediatric ICU) for RSV and pneumonia.  I think they are all feeling better now.  Will also has his feeding evaluation this month at Children's as well as his regular visit to the Opthomologist.  It is a busy month.  I will keep you posted on how all of this goes!