Will was lucky to avoid both the heart and gastrointestional issues but does have hypothyroidism. It is complicated for me to explain this since I barely have a grasp on it...everytime we see his endocrinologist I have her explain it again...but essentially it means that he is not producing enough thyroid hormone so his thyroid has to work extra hard to get its jobs done. And I stress the jobS part. The thyroid is very complicated and the type of hypothyroidism that babies with Ds have is a little different than most hypothyroidisms. So we see the endocrinologist every 3 months. We are on our second endocrinologist. The first one really confused me and drew funny pictures on papertowels and I just didn't connect with him. When I left, I was unsure if Will needed thyroid medicine or if my car needed an oil change. The new endocrinolgist is much better. She is very clear and concise when explaining everything to me and has great bedside manner. For now Will is on daily thyroid medicine, which is really not affected our life like I thought it would. It wouldn't have been an issue at all, except that because of the way thyroid medicine is absorbed, they only offer it in pill form. Since Will can't take a pill yet, I had to get creative. So with some help from another mom in our group that also has a kiddo on thyroid medicine, I figured out a way to crush it and put it into the end of a baby syringe, then suck up apple juice to make my own liquid concoction. Most days he takes it without compliant and sucks the juice out. Otherwise though, Will is a very happy, healthy, growing boy that likes to get into things and make messes and hates to get clean. Pretty typical:)
2 comments:
"...or if my car needed an oil change"...hilarious. you can barely tell that's ron's child in that picture.
sorry andrea that pic is all ron jr.
Post a Comment