On November 18 2009 at 4:02 am William Alan Bartosch was joyfully welcomed into our family. He weighed in at 7 lbs 9 oz and 20 in long. We were stunned to discover that he was born with Trisomy 21, or Down syndrome. We love him unconditionally from the top of his toe-head to the tips of his toes. We know that this diagnosis will not define him. He is a happy, healthy little boy that just happens to have an extra chromosome.



Follow us on this unexpected and exciting journey as we learn how to live life Will's Way.



Sunday, October 14, 2012

Fun at the Farm!

Will had fun this weekend at the farm with his buddies!  He enjoyed petting the goats and baby cow and liked the hayride too!






 


Will also went to the Cincinnati Down Syndrome Clinic this week.  He was evaluated and observed by several doctors and therapists including a MD that specializes in Ds, a physical/occupational therapist, a speech therapist, a nutritionist and a geneticist.  The clinicians all had positive things to say about his progress since last year and had lots of good suggestions.  He was a little stubborn with the evaluation process and refused to do several things that I KNOW he can do and say.  Which is really hard to watch.  But that is just part of the evaluation process and part of being a little kid.  The clinicians know that and I know that, but it is still hard.
Will is doing well in school but some days has a hard time.  He doesn't always feel comfortable joining in to the free play time and often perfers to sit back and watch.  Which is also hard for me to see.  During the orgainized activities Will does well though and overall is having a good year so far.  He has really connected with his speech therapist and physical therapist and likes to play games with them.  He has Halloween day and picture day coming up this month!
This week we officially start the IEP process with another set of evaluations.  I am sure they willl be challenging as well but are necessary to get his services.  He is also starting up with speech therapy this week as our funding through the county came through.  Thank goodness!!!  We have lots of fun new activities that Will has been working on at home too.  This little guy never gets bored!
 
 
 

1 comment:

unc rizzle said...

love the fence pics and the goat (i think that's a goat) pic, but not nearly as much as i love seeing my favorite li'l bartosch rockin' an iu sweatshirt... keep that sweatshirt clean, basketball season starts nov. 1...