On November 18 2009 at 4:02 am William Alan Bartosch was joyfully welcomed into our family. He weighed in at 7 lbs 9 oz and 20 in long. We were stunned to discover that he was born with Trisomy 21, or Down syndrome. We love him unconditionally from the top of his toe-head to the tips of his toes. We know that this diagnosis will not define him. He is a happy, healthy little boy that just happens to have an extra chromosome.

Follow us on this unexpected and exciting journey as we learn how to live life Will's Way.

Tuesday, February 23, 2010

DS Research

Gaga and Papa Brough and Ron and I went to a very interesting talk at OSU last night about research to improve learning, memory and speech in individuals with Down Syndrome. The foundation has a website if you are interested in reading more... http://www.dsrtf.org/.
Some of what we took away is that there are many similarities in the treatment and research of people with Alzheimer's and those with DS, that there are lots of very promising drugs in the works to improve cognitive function for DS individuals but that they are still in trial, and that DS research is drastically under-funded.

It was a very interesting evening. Thanks Aunt Mere for watching Will so we could go:)

This picture is of Will and Ron at Jonas' birthday party this weekend...I'm not sure who is more unhappy about the hats Gaga and Ava made...Will or Ron!?! Happy 2nd Birthday Jonas Edward!

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