On November 18 2009 at 4:02 am William Alan Bartosch was joyfully welcomed into our family. He weighed in at 7 lbs 9 oz and 20 in long. We were stunned to discover that he was born with Trisomy 21, or Down syndrome. We love him unconditionally from the top of his toe-head to the tips of his toes. We know that this diagnosis will not define him. He is a happy, healthy little boy that just happens to have an extra chromosome.



Follow us on this unexpected and exciting journey as we learn how to live life Will's Way.



Thursday, September 16, 2010

Is My Butt Showing?

Will's ear tube surgery went very well today.  It was a long day but one we were ready to take on.  We got to Children's Hospital bright and early (actually it was still dark!) with a very hungry and very confused little boy.  We were in the surgery prep room for almost two hours while many different doctors came in and asked all the same questions and took all the same vitals and all told us how cute our boy was:)  Ron and I passed him back and forth and took him to the toy room to keep him occupied and keep his mind off of that bottle in between doctors.  So they finally took him back around 7:45 and the doctor came out to find us and Gaga Judie in the waiting room around 8:15 to tell us all had gone well.  He was extremely grumpy, confused, hungry and down right mad when we got back to the recovery room.  Once the pain medication kicked in and he calmed down, they gave us our instructions and off we went.  He came home and ate a bottle and took a nap and by this afternoon was his normal smiley self:)  The only major side effect so far is that he has been doing raspberries (making sounds with his tongue and lips) all afternoon.  So I think either his ears itch or feel funny or we all sound just a little bit loud and strange.  It is actually pretty funny!  We will follow up with Dr. Elmaraghy in his clinic in a month and probably have to stay out of non-chlorinated water but otherwise the tubes shouldn't affect our everyday lives.  So we are tired from our long day but happy that we made it past another hurdle and can put this day behind us! 
How cute are these little surgery gowns!  Uncle Ricky texted me during surgery to remind me to make sure William's butt wasn't showing:)

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