On November 18 2009 at 4:02 am William Alan Bartosch was joyfully welcomed into our family. He weighed in at 7 lbs 9 oz and 20 in long. We were stunned to discover that he was born with Trisomy 21, or Down syndrome. We love him unconditionally from the top of his toe-head to the tips of his toes. We know that this diagnosis will not define him. He is a happy, healthy little boy that just happens to have an extra chromosome.



Follow us on this unexpected and exciting journey as we learn how to live life Will's Way.



Tuesday, November 22, 2011

We Have a Walker:)


When I found out what it really meant to have Down syndrome and that all Will's milestones would be not only be hard for him, but very delayed it really bothered me.  Smiling, sitting, talking, crawling, walking, clapping, teething, pointing.  All the things you excitedly call grandma to tell her he did.  All these things that just happen one day to most typical kids.  They take a lot of work and patience for Will.  At somepoint I accepted Will and I's fate but in my head I have still set goals for him.  The range for a child with Down syndrome to start walking is 18-36 months and so I unofficially decided that Will's goal was age 2.  I feel very proud that he met this goal and that he was walking on his second birthday:) But I am even prouder of all the work and progress along the way.  It is amazing and agonizing watching him try so hard for so long.  It was even harder to watch much younger typical kiddos do it overnight.  Hopefully someday that pain will go away...for now though...we have a walker!

No comments: