On November 18 2009 at 4:02 am William Alan Bartosch was joyfully welcomed into our family. He weighed in at 7 lbs 9 oz and 20 in long. We were stunned to discover that he was born with Trisomy 21, or Down syndrome. We love him unconditionally from the top of his toe-head to the tips of his toes. We know that this diagnosis will not define him. He is a happy, healthy little boy that just happens to have an extra chromosome.



Follow us on this unexpected and exciting journey as we learn how to live life Will's Way.



Saturday, October 27, 2012

Look what else Lillian taught me to do...



Will re-started private speech therapy last week.  He was able to squeeze in with his old therapist which makes the intro period much easier!  She is happy with how much he is approximating sounds while signing...'ba' for ball, 'mo' for more, 't' for train.  I am happy too that he is making small progress in speech, it just never seems like it amounts to much.  He still doesn't use any words unless prompted, so communication is getting to be an even bigger challenge.  Tonight at Chick-Fila, we were playing in the play space when a little girl asked me how old he was and does he talk?  I said no, not yet, he just jibber jabbers.  She goes, oh, well my brother is two and he talks.  Cute kid.  Sigh.  But on a positive note, Will has conquered the play gym there!  Until recently he needed cousin Ava to help him up the big steps to get to the slide, and would usually have to be saved when he got scared up on top.  Tonight he climbed and played all by himself, except for our little friend and her brother, and was so happy and proud!  He wore himself out going up and down!
He wasn't into carving the pumpkin and touching the goop this year:(  He did like coloring on the pumpkin though!





Ron is off to Maryland to run another marathon so Will and I went to the zoo.  This monkey did not like me taking his picture!

 
 



Monday, October 15, 2012

Two Little Monkeys

It is funny to see how Lillian is starting to become a peer model for Will too!  The crazy girl has been showing Will how to jump.  They are getting a workout of jumping and pullups!

video

Sunday, October 14, 2012

Fun at the Farm!

Will had fun this weekend at the farm with his buddies!  He enjoyed petting the goats and baby cow and liked the hayride too!






 


Will also went to the Cincinnati Down Syndrome Clinic this week.  He was evaluated and observed by several doctors and therapists including a MD that specializes in Ds, a physical/occupational therapist, a speech therapist, a nutritionist and a geneticist.  The clinicians all had positive things to say about his progress since last year and had lots of good suggestions.  He was a little stubborn with the evaluation process and refused to do several things that I KNOW he can do and say.  Which is really hard to watch.  But that is just part of the evaluation process and part of being a little kid.  The clinicians know that and I know that, but it is still hard.
Will is doing well in school but some days has a hard time.  He doesn't always feel comfortable joining in to the free play time and often perfers to sit back and watch.  Which is also hard for me to see.  During the orgainized activities Will does well though and overall is having a good year so far.  He has really connected with his speech therapist and physical therapist and likes to play games with them.  He has Halloween day and picture day coming up this month!
This week we officially start the IEP process with another set of evaluations.  I am sure they willl be challenging as well but are necessary to get his services.  He is also starting up with speech therapy this week as our funding through the county came through.  Thank goodness!!!  We have lots of fun new activities that Will has been working on at home too.  This little guy never gets bored!
 
 
 

Tuesday, October 9, 2012

Buddy Walk 2012

This year's Buddy Walk was another huge success!  We had a beautiful day surrounded by people we love.  We surpassed our goal and raised $2827 thanks to our generous supporters!  We can not thank you enough for giving to Will's team and for supporting our family and our Down syndrome community.  We appreciate your love, awareness and acceptance of our amazing little Buddy!
 
 
 
 
 


 
 
This is a picture of Will's fellow Buddies!  They are growing up together and we are so happy to be taking this journey with them!
 

 

Wednesday, October 3, 2012

Down Syndrome Awareness Month and Perfect Video



As we start Down Syndrome Awareness Month in October, take the time to watch this video.  It is worth it.  Great story about real emotions.  And coming out a better person with a mission on the other side of that grief.  It tells the same story we have all heard before but it is great to hear it from a man's perspective.
I have pictures of the Buddy Walk and an update to share soon too!
Happy DS Month!