On November 18 2009 at 4:02 am William Alan Bartosch was joyfully welcomed into our family. He weighed in at 7 lbs 9 oz and 20 in long. We were stunned to discover that he was born with Trisomy 21, or Down syndrome. We love him unconditionally from the top of his toe-head to the tips of his toes. We know that this diagnosis will not define him. He is a happy, healthy little boy that just happens to have an extra chromosome.

Follow us on this unexpected and exciting journey as we learn how to live life Will's Way.

Thursday, March 14, 2013

Will's World

I'm feeling lucky to be a part of this world that I dreaded just 3 years ago.  I am getting to the point where I can't imagine it another way.  The Down syndrome community is like nothing I have ever experienced before. It is like having a special pass to a secret club.  Last week an email spread around my local Ds community of a new mom of a baby girl with Ds that was looking to connect with other moms. It spread like wildfire. Other moms were emailing around to get her in touch with people in her neighborhood (me), or with similar complications, or with kiddoes the same age. It was amazing!We all can't wait to meet the newest member of our club:)

Will playing at the Science Center with our Ds Weekend Playgroup

The other really cool thing that happened to me today is that I was checking out at the grocery store when I noticed that the young woman at the end helping bag the groceries had Down syndrome. The cashier waved and gooed at Will and he waved and said 'hi' to both women. The woman with Ds immediately looked at me and said 'does he have Down syndrome?'.  I said 'yes he does' and she said 'I thought so'.  So we did introductions and she told me she wants to work with kids with Down syndrome.  I said maybe she should volunteer at a preschool and then we all said goodbye.  The cashier admitted that she didn't even realize Will had Ds, but this young woman picked up on it right away:)  Wouldn't it be great for her to work at Will's school?! I need to look into this. But mostly I'm just thrilled to have had this wonderful interaction with this woman.  I still struggle with thinking about Will in adulthood and how that might look, but this helped my view a little bit!

1 comment:

GAGA Judie said...

How sweet that she said something to you about Will.Its like she must have felt a bond.It's so encouraging to hear these stories but for you to actually experience it is even better.