On November 18 2009 at 4:02 am William Alan Bartosch was joyfully welcomed into our family. He weighed in at 7 lbs 9 oz and 20 in long. We were stunned to discover that he was born with Trisomy 21, or Down syndrome. We love him unconditionally from the top of his toe-head to the tips of his toes. We know that this diagnosis will not define him. He is a happy, healthy little boy that just happens to have an extra chromosome.



Follow us on this unexpected and exciting journey as we learn how to live life Will's Way.



Tuesday, October 25, 2011

Stubborn is...as Stubborn Does

I found this article very funny because Will is so very stubborn and I have never once blamed it on Down syndrome.  Often it is "Will's Way' even when I would prefer it be mommy's way, but since Ron is the only person I know that is more stubborn than me, it is quite fitting that our offspring would be as stubborn as God makes them:)  I think this article is quite true about my stubborn baby boy and it helps me approach his stubborness with a little more patience.  She wisely says, 'The only way to help anyone become less resistant is to help them to feel safe enough to try something new or different'.



Stubborn is...as Stubborn Does
by Carol Johnson, Calgary, Alberta, Canada

It is interesting to me how many people talk about their child's stubborn behavior as if it was part and parcel with having Down syndrome. It isn't.
There are many people who are stubborn who do not have DS. In fact, in some situations, being stubborn is seen as a positive trait.
I have heard people say that the reason they came out as winners in a situation was because...“I was stubborn and no one was going to push me around .”
“They thought I would cave, but I was too stubborn to give up easily.”
So, what is this stubborn behavior that we see with students who have DS and how can we think about it?
I see stubborn behavior as a direct result of lacking the skills and/or language to negotiate a position.
Often, we will take a stance on something we care about and, right or wrong, stick to that stance until we understand or agree with another's view.
A student with DS will continue to do things in a specific way because it is safe, it is known and it has worked in the past. When we try to change their behavior, when we try to introduce new things, we threaten their "safe place."
Some of us are open to change and will accept change far better than others. This is the same for students with DS.
Some of us are able to argue our side of the issue, some of us can be persuasive and bring people to our view and not have to change — the other person changes.
Students with DS cannot do this as well. They lack the language, the cognitive flexibility needed in verbal discourse and the larger world view to win many verbal arguments. So...they look stubborn.
Think about it. If you were in a situation where you did not understand what was going on around you and people were trying to get you to do something you were unsure of, what would you do?
You would resist, you would stay doing what you know, you would be seen as stubborn. What if you did not have the language skills to share your views, what if the other party did not understand you or did not care about what you had to say? Then, you were punished or censured because you were seen as stubborn. How would this affect your level of cooperation the next time?
How would you respond to these people who "made you do something you did not understand nor even agree with?" You may become even more stubborn or resistive. And, they, in turn would see this as "noncompliance" or as a "problem." They would respond in a way that assumes that your stubbornness is
something that exists on its own; apart from you having a different view of the same situation or apart from your being unable to communicate, your point of view successfully.

How can we change the pattern?
By letting go of the myth of stubbornness and seeing stubborn behavior as resistance. Resistance to something new, resistance to something that is not understood, resistance to having others be in control, resistance to someone they may not trust or understand. The only way to help anyone become less resistant is to help them to feel safe enough to try something new or different.
When children are young, they will not respond very well to changes and will withdraw. As they grow older, they will use strategies that have worked in the past… withdrawing , not looking , pouting , sitting , throwing themselves down (stubborn-looking behaviors).
The more stubborn a student looks, the more useful this behavior has been in the past; using this repertoire of strategies has allowed the student to remain in a safe place.
Adults are part of the problem.
We have taught children what they need to do so we will stop pushing or so we will leave them as they want to be. Then, sometimes, we become angry. As we become angry, children resist further as they do not understand what is happening and are often upset with the situation as well. How many of us respond to anger if we are nervous about a situation?
How many of us would become less "stubborn" if someone demands that we do something that we are not sure about?

Some of the best people are just stubborn enough to hang in there when many others have given up on a child. So, join them.
Be stubborn about a child's ability to learn and help him or her to feel
safe enough to venture into new territory with you alongside.
Stubborn is...as Stubborn Does.

1 comment:

unc ricky said...

Good article. So "the apple doesn't fall far from the tree" might not apply anymore?