On November 18 2009 at 4:02 am William Alan Bartosch was joyfully welcomed into our family. He weighed in at 7 lbs 9 oz and 20 in long. We were stunned to discover that he was born with Trisomy 21, or Down syndrome. We love him unconditionally from the top of his toe-head to the tips of his toes. We know that this diagnosis will not define him. He is a happy, healthy little boy that just happens to have an extra chromosome.



Follow us on this unexpected and exciting journey as we learn how to live life Will's Way.



Monday, May 16, 2011

Ear Tubes Take 2!

Will is having his ear tubes replaced tomorrow.  He was at the ENT last week and upon examination of his ears they decided that the left one is plugged so they need to go in and clean his ears and replace both tubes.  They concluded this AFTER he screamed his head off for fifteen minutes while they tried to clear them in the office:(  The good news is that his hearing was really not being affected based on his audiology screen.  Also since we have been through this before, we know it really is an easy surgery.
Will also went to the new Endocrinologist at Children's last week.  She was great.  She explained everything in a clear, concise way and answered all of my questions.  Since we were back at Children's too, everything flowed together since they already have his entire life history in their system.  I am happy we made the switch!  We got his labs back right away and all his bloodwork was in the normal range, so we are still doing well with the current dose of thyroid medicine.  So we will keep doing what we are doing and check back every couple months.
So please say a prayer for Will tomorrow.  Although I know this is a quick and minor surgery, anything that involves anesthesia and my baby makes me a little uneasy.  Will is a trooper...I am sure he will be back to knocking things off the coffee table or removing EVERYTHING from the kitchen cabinets by lunchtime!

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